Towards a Dutch nationwide registry for Alzheimer's disease and other dementia's: rationale, design, and initial observations of the ABOARD Cohort

Abstract

Background: Alzheimer's disease (AD) takes 20 to 30 years to develop, yet hardly any existing data collection or registry takes into account the entire disease trajectory. Moreover, prediction models are often based on selected research populations and their outcomes may not be most relevant to patients’ daily lives.