Incorporating perspectives of self‐advocates and families towards more accessible research of Alzheimer’s disease in Down Syndrome

Abstract

Background: Over 250,000 people live with Down Syndrome (DS) in the United States, with advances in healthcare and support leading to an average life expectance of 63.5 years of age. With increased age, individuals carry a high risk for Alzheimer’s disease (AD); which is now the leading cause of death over the age of 35 years.

The paper